WXPort
Sponsored by: Plattsburgh Area Weather Sponsored by CVPH Medical Center

Resources

print this story   Print this story
email this story   E-mail this story
  Post to del.icio.us

Photos



P-R Photo/Kelli Catana /


Hannah Sames with her parents, Lori and Matt Sames.
P-R Photo/Kelli Catana /


Hannah Sames sings Hannah Montana songs and spends time with her mother, Lori Sames. Watch video of Hannah at www.vimeo.com/944475.
P-R Photo/Kelli Catana /

Published July 20, 2008 05:30 am - Matt and Lori Same's third daughter, Hannah, has giant axonal neuropathy, a terminal disease. They established Hannah's Hope Fund to find a cure. Today, there will be a benefit dinner at the Rainbow Banquet Hall in Altona.

Creating hope in the face of the horrific
North Country natives launch fund to find a cure for devastating nerve disease that afflicts their daughter

By ROBIN CAUDELL
Staff Writer

Girl. Lori Burnell. Played soccer, volleyball and ran track at Beekmantown Central School.

Boy. Matt Sames. Attended Plattsburgh High School and played football, basketball and baseball.

Though at rival schools, girl and boy knew of each other but "met" the summer of 1990 at Woodstock's in Plattsburgh. Matt, an English major, had graduated from Le Moyne College in Syracuse. Lori was majoring in economics at St. Michael's College in Winooski.

They dated a bit that summer and the next. They married in 1997. Their wedding was at St. Mary's of the Lake Church on Cumberland Head. Their reception was at the Elks Club on Cumberland Avenue in Plattsburgh.

"Our wedding was like the most special day," Lori said. "All of our friends and family were together under one roof. We thought the whole day, we would never again have all these people who are so special in our lives together."

Matt's career took them to Buffalo, where their first daughter, Madison, was born in 1999. When she was 7 months old, the Sameses relocated from Buffalo to Clifton Park as a result of another transfer. Lori continued to telecommute for IDX, a health-care computer-software company.

When second daughter, Reagan was born in 2001, Lori decided to become a stay-at-home mom. Three years later, daughter number three, Hannah, was born.

"She was a completely healthy girl and met all her infant milestones," Lori said. "We had no health concerns."

MYSTERY CONDITION

When she was 2 and a half, Hannah's left arch rolled inward. Her parents took her to an orthopedist and podiatrist, who both pronounced the child fine. By the time Hannah was 3, both arches rolled inward and were collapsing.

"Her gait had become awkward."

Hannah's pediatrist put her through a rigorous physical exam and concluded, "That's just Hannah."

Lori's sister-in-law, Sarah, an occupational therapist, thought differently when she visited from California.

"She was very upset with Hannah's gait and thought she had a neuro-muscular problem going on."

On her cell phone, Sarah videoed Hannah walking and running and showed it to a physical-therapist colleague, who said Hannah's gait was like a child with muscular dystrophy. Hannah needed a neurological workup.



print this story    email this story   




ADVERTISEMENT
monster

Premier Guide
How to Contact Us

MAIN OFFICE
Press-Republican

P.O. Box 459
170 Margaret Street
Plattsburgh, NY 12901
(518) 561-2300


NEWSROOM
Hours:
Weekdays 8 a.m. to midnight; Weekends, 2 p.m. to midnight
Phone: 518-565-4131 Fax: 518-561-3362
E-mail: news@pressrepublican.com
Sports: 518-565-4124
Features: 518-565-4138


CIRCULATION/CUSTOMER SERVICE
Hours:
Weekdays 8 a.m. to 5 p.m., Saturday and Sunday (phone only) 8 a.m. to noon.
Circulation Phone: 518-565-4110


CLASSIFIED ADVERTISING
Hours:
Monday - Friday, 8am to 5pm
Phone: 518-565-4105 Fax: 518-561-1172
E-mail: classifieds@pressrepublican.com
Obituaries & Legals: 518-565-4178
Obituary E-mails: obits@pressrepublican.com
Legal Ad E-mails: legalads@pressrepublican.com

Today's Front Page
View P-R Frontpage:   Click on the image of the Press-Republican frontpage to view our frontpage archives.

Subscribe:  Click here to receive a subscription to the Press-Republican for as little as $13.00 per month.

Frontpage Reprints:  Click here to purchase a reproduction of a full page of the Press-Republican.
Today's Front Page
© 2008, CNHI

Community Newspaper Holdings, Inc.CNHI Classified Advertising NetworkCNHI News Service
Associated Press content © 2008. All rights reserved. AP content may not be published, broadcast, rewritten or redistributed.
Our site is powered by Zope and our Internet Yellow Pages site is powered by PremierGuide.
Some parts of our site may require you to download the Flash Player Plugin.