That uncertainty is unsettling to both Upton and her mother, Tammy Ezero, who is concerned for her daughter as well as her two grandsons.
“She’s got a lot on her plate. I pray for her all the time.”
After the operation, her son will spend a few days in the Pediatric Intensive Care Unit then Upton will travel back to Fletcher Allen for follow-up appointments.
Upton isn’t yet sure how much the operation will cost and if Isaac’s insurance will cover the entire cost.
“We’re going to have expenses to cover,” Upton said.
“Whatever it is, we’ll manage,” Ezero said. “He can’t live without it.”
’AMAZING’ TO BE A MOM
Upton’s other child, Ethan Higgins, has also had health problems since he was less than 1 year old.
Higgins has a spot on his head that will need to be removed once he is about 10 years old since it will turn cancerous at the start of puberty, Upton said.
Upton’s advice to other mothers whose children have health conditions is to reach out to the community for support.
“For anybody in need ... your community is the best place to go.”
Upton gets support from her mother and her best friend, Monica Ackey, with whom she attended Peru High School.
Ackey is currently pregnant with her fourth child, Upton said, and the two moms often get together for play dates.
But, despite support from friends and family, being a mother to two children with special needs is difficult.
“It’s stressful,” Upton said with tears in her eyes. “It’s something you don’t want your children to go through.”
But each day is a joy, she said.
“Every day; it’s an accomplishment,” she said. “It’s amazing to be a mother.